Mom Diagnosed with ALS (Lou Gehrig's Disease)...Help?

[TCE]

Allergens in the diet may well induce inflammation in your intestines, that inflammation will prevent absorption of the important nutrients. Prolong chronic inflammation takes a while to heal. The only outward symptom might be a little acne or reoccurring dandruff.

Just an aside, an all vegan diet has none of the B12 Vitamins you would need. It is a multistage process to get the B12 from animal proteins to your neural system. I would keep to the diet but check out the book. The apple cider vinger bit might sound like hersay but Danno is likely spot on in his recommendation. Whats a couple table spoon of viniger going to hurt? At worst it might cure some heartburn, which is usually a common tell to an out of wak ph balance

I remember a while ago Dr. Mercola recommended diluting raw, organic apple cider vinegar with a bit of water since it can cause severe burning going down, the water diluting it solves this problem. It is also a somewhat helpful weight loss aid, but that is another discussion for another day.

 

[Anti Federalist]

Please see a doctor and do not take medical advice from here.

So sorry to hear TCE

But Mark is right. This forum is definitely not a place for medical advice. There may be some good suggestions, but like you are already doing, your homework is the best work on the subject.

Sorry

+infinity

Normally sound advice, but in this case the OP has made it clear the allopaths have pretty much thrown their hands up at the problem.

Some good advice so far in this thread actually.

TCE, perhaps take a consulation with a naturopath and see what they say.

 

[TCE]

Normally sound advice, but in this case the OP has made it clear the allopaths have pretty much thrown their hands up at the problem.

Some good advice so far in this thread actually.

TCE, perhaps take a consulation with a naturopath and see what they say.

Do you know where I can find one?

 

[Ninja Homer]

Do you know where I can find one?

http://www.naturopathic.org/AF_MemberDirectory.asp?version=2

http://heartspring.net/naturopathic_directory.html

http://www.findnd.com/find-a-naturopath.html

 

[Ninja Homer]

When a doctor says that something is "incurable" and there's nothing more that can be done, the proper response is, "fuck you, I'll cure it myself!" When an allopathic doctor says a disease is incurable, it just means that there isn't a drug to prescribe for it, and there's nothing to cut or burn out.

You're going to find all kinds of information and possible cures/treatments as you search. The best way to handle it is to find a naturopathic doctor that can help choose the best treatments to try, and then follow up to see if they are working.

One of the best places to search for alternative treatments is http://curezone.com. It's a huge site, with a lot of knowledgeable people (including many naturopathic doctors) and they have a pretty good search engine.

Making sure it's not Lyme disease is good advice... that's the first thing I'd do. Lyme can mimic over 300 diseases, and those in the know about Lyme believe that it's a lot more widespread than allopathic doctors believe, and it's responsible for a lot of the newer disease epidemics like chronic fatigue syndrome, MS, and ALS. There are several types of tests for Lyme that almost all doctors use, but the problem is that these tests have a lot of false negatives. You may want to research it a bit, but the best Lyme test available when I was looking into it a few years ago was here: http://centralfloridaresearch.com/ Lyme is pesky, but there are alternative cures.

Good luck. Try to keep your Mom in high spirits. The body and unconscious mind controls the healing process, but the subconscious tells it what to do... as long as a person has hope and a belief that they will be cured, the body will do all it can to heal itself.

 

[squarepusher]

YouTube - THC Kills Glioma Cancer Cells - Medical Miracles from Europe

 

[newyearsrevolution08]

herb is amazing but it isn't a cure all however it sure does have its many benefits

doctors nowadays freak me out, don't know if they are talking based on actual research or simply what they must tell you based on current drugs they need to peddle.

 

[messana]

My grandfather died of ALS. I remember it effected his motor skills for speech at first then eventually had to be confined to a wheel chair. I was only 14 and lived out of state at the time so I didn't really get see what my grandmother had to go through so I apologize of not being any help.

Best wishes to you and your mother.

 

[fedup100]

Do not know where you live but you want to go the best not just a naturoapath.

Dr. Jonathan Wright Kent Wa. He is a real MD and a famous over the top natural doctor that will always go the natural route first. People come from all over the world to see this man. He is written about in Suzanne Somers new book and he really is the very best:

http://www.tahomaclinic.com/

 

[TCE]

Thanks again everyone. We are working through all of the information and are going to follow through what we have right now, but also checking into the Naturopath who is somewhat close to me.

FedUp: I'm from Chicago, so that would be a trek for me. Mercola's Health Clinic is very close by though, and even though he charges a suicidal amount of money, it might be worth it.

 

[Marty Murray]

TCE, the als diagnosis and prognosis your mother has received are basically the product of a mass delusion, one that includes the incorrect ideas that there is no known cause of als and that there is no way available to solve it.

The truth is that the process that creates als is well understood by many and that the problem can be solved using methods available today.

The nerve degeneration that is called als is basically a trigger reaction cycle involving somewhat different triggers and reactions in each case. These triggers and reactions can include a emotional trauma, emotional represssion, vaccine trauma, exposure to certain chemicals, any number of things. Notice I did not classify things as triggers and reactions. This is because this is a cycle we are talking about with the triggers and reactions being interchangeable. For instance, a vaccine can be a trigger. At the same time, the vaccine itself was a reaction to another problem.

To further understand how als is created, you could look at my work, along with the work of Gabor Mate, Steven Shackel, Evy McDonald and Craig Oster, among others.

What this all means is that by using a holistic approach involving things like mind body methods, dietary changes and psychotherapy, one can solve als and heal.

How this can be done is also discussed my work and the work of the others mentioned.

To get more ideas you could also check out the work of Dean Ornish and the blog of Joe Wions.

Health is never about luck. It is always about approach to living. Change your ways, change your health. Works every time.

 

[Magicman]

I am doing a search for you it looks like you need to find a natural way to lower the Glutamate release that is happening in the body. I left two solutions a natural way to lower Glutamate and a prescription way. I would try with the natural way first then try the prescription. Just research the prescription carefully over any side effects.


Try seeking a naturopath.

L-Theanine, is a NATURAL neurotransmitter and used in decreasing Glutamate activity.

http://ezinearticles.com/?Autism-Treatment---Glutamate-Excitotoxicity&id=3390537

Also taking L-Threonine and Creatine

http://healthlibrary.epnet.com/GetC...03-7f62-4563-8d47-5fe33da65dd4&chunkiid=21430

http://globinmed.com/index.php?opti...cle&id=77583:Threonine&catid=443:t&Itemid=141


There are also natural supplements which can be helpful for glutamate sensitivity as well. One supplement I have talked about in a previous recording called nutritional lithium. This differs from the drug lithium, I am talking about elemental lithium. Lithium can have a blocking or regulating effect on NMDA receptor activity in response to glutamate. Another option is called Theanine. Theanine is a green tea extract and can decrease glutamate sensitivity by regulating the NMDA receptor as well. It decreases glutamate's over stimulation of the brain cell. So both lithium and theanine have been found useful at helping reduce the hyper excitability in the brain from glutamate and the NMDA receptor activity in the brain.



Article Source: http://EzineArticles.com/3390537


"Studies also have focused on the role of glutamate in motor neuron degeneration. Glutamate is one of the chemical messengers or neurotransmitters in the brain. Scientists have found that, compared to healthy people, ALS patients have higher levels of glutamate in the serum and spinal fluid. Laboratory studies have demonstrated that neurons begin to die off when they are exposed over long periods to excessive amounts of glutamate. Now, scientists are trying to understand what mechanisms lead to a buildup of unneeded glutamate in the spinal fluid and how this imbalance could contribute to the development of ALS."

http://www.ninds.nih.gov/disorders/amyotrophiclateralsclerosis/detail_ALS.htm




"No cure has yet been found for ALS. However, the Food and Drug Administration (FDA) has approved the first drug treatment for the disease—riluzole (Rilutek). Riluzole is believed to reduce damage to motor neurons by decreasing the release of glutamate. Clinical trials with ALS patients showed that riluzole prolongs survival by several months, mainly in those with difficulty swallowing. The drug also extends the time before a patient needs ventilation support. Riluzole does not reverse the damage already done to motor neurons, and patients taking the drug must be monitored for liver damage and other possible side effects. However, this first disease-specific therapy offers hope that the progression of ALS may one day be slowed by new medications or combinations of drugs."

http://www.ninds.nih.gov/disorders/amyotrophiclateralsclerosis/detail_ALS.htm

 

[Chester Copperpot]

When a doctor says that something is "incurable" and there's nothing more that can be done, the proper response is, "fuck you, I'll cure it myself!" When an allopathic doctor says a disease is incurable, it just means that there isn't a drug to prescribe for it, and there's nothing to cut or burn out.

You're going to find all kinds of information and possible cures/treatments as you search. The best way to handle it is to find a naturopathic doctor that can help choose the best treatments to try, and then follow up to see if they are working.

One of the best places to search for alternative treatments is http://curezone.com. It's a huge site, with a lot of knowledgeable people (including many naturopathic doctors) and they have a pretty good search engine.

Making sure it's not Lyme disease is good advice... that's the first thing I'd do. Lyme can mimic over 300 diseases, and those in the know about Lyme believe that it's a lot more widespread than allopathic doctors believe, and it's responsible for a lot of the newer disease epidemics like chronic fatigue syndrome, MS, and ALS. There are several types of tests for Lyme that almost all doctors use, but the problem is that these tests have a lot of false negatives. You may want to research it a bit, but the best Lyme test available when I was looking into it a few years ago was here: http://centralfloridaresearch.com/ Lyme is pesky, but there are alternative cures.

Good luck. Try to keep your Mom in high spirits. The body and unconscious mind controls the healing process, but the subconscious tells it what to do... as long as a person has hope and a belief that they will be cured, the body will do all it can to heal itself.

qft

 

[Magicman]

qft

All diseases are curable you just need to look outside the box to find the cures. Nature has everything we need. ALl Lou Gehrig's disease is an influx of Glutamate activity. If there not getting down to the science of the problem and there system doesn't support natural neurotransmitter as the way to treat it then of course they won't find a cure.

 

[angelatc]

All diseases are curable .

Apparently insanity isn't.

 

[Eagles' Wings]

TCE, sincere blessings to you and your mother. How is she doing? I was looking into ALS because our neighborhood has it. I found a hopeful blog by a guy named Joe Wions who has had ALS for almost 10 years from the time of diagnosis - very unusual. His most recent blog was 3/18/11. Having had much experience with chronic illness, I hope you are taking care of yourself and are open to help from family and friends as you care for your mom.

 

[AFPVet]

Please see a doctor and do not take medical advice from here.

More importantly... see many doctors—and not a lot of 'mainstream doctors'. Many mainstream doctors are nothing more than legalized drug dealers for the corporations. See a DO (Doctor of Osteopathic Medicine). DO's are so much better than drug pushers. There are many forms of treatment outside of drugs.

 

[angelatc]

More importantly... see many doctors—and not a lot of 'mainstream doctors'. Many mainstream doctors are nothing more than legalized drug dealers for the corporations. See a DO (Doctor of Osteopathic Medicine). DO's are so much better than drug pushers. There are many forms of treatment outside of drugs.

The doctor I have now is a DO and he's the biggest pill pusher I've ever met.

 

[AFPVet]

The doctor I have now is a DO and he's the biggest pill pusher I've ever met.

That sucks... most of the DO's I've heard about were much more holistic.

 

[Eagles' Wings]

It takes alot of time, research and even interviewing to find good medical/alternative help. It seems that most DO's get tainted quickly if they are with an HMO. The DO's who have private practices and are conservative with medication are usually not covered under insurance.

The multi-disciplinary approach is key. Even a good homeopath is helpful with dealing with ALS. My HSA will pay for homeopathy because my GP (who is somewhat holistic) prescribed it for pain management.