Mom Diagnosed with ALS (Lou Gehrig's Disease)...Help?

[TCE]

As the title says, my mom was diagnosed with ALS two days ago and the medical community has effectively said she's screwed. If anyone has any experience with this or knows anyone who had, I would appreciate it. Thanks in advance.

This is pretty much all I have found on alternative methods: http://www.naturalnews.com/028734_ALS_remedies.html

 

[fedup100]

Was diagnosed with mixed connective tissue disease which included ALS and Scleroderma in 1992. Was give 2 years to live. I heard of Dr. Harry Browns work with antibiotic Minocycline and scleroderma.

I was fortunate to have had a Dr. that allowed me to take the antibiotic. I took it for two years and I have survived to tell the story.

This antibiotic has now been shown to stop most cancers in it's tract with no kill off or side effects.

Run to this treatment as fast as you can and do not let any dr. talk you out of it.

This book tells you how to take it and how much, get it:

http://www.brightsurf.com/buy/books...e-proven-therapy-that-can-save-your-life.html

 

[Ethek]

I would say firstly, diet diet diet.

A book 'Could it Be B12' Look it up on Amazon, pay attention to the elaborate, hard to maximize and often broke absorption process for B12 in the modern American diet, stomach PH and bacterial balance being critical.


The other poster pointed to AntiBiotics. I would be careful... antibiotics usually level the balance of your gut floor. To throw out another line of thought that antibiotics might actually encourage an imbalance with yeast. Perhaps the antibotic he sites might well also discourage yeast or fungal issues. I'm not a doctor but these issues require a full, comprehensive understanding. I thought this was intresting http://www.healthlyceum.com/id5.html

 

[MRoCkEd]

Please see a doctor and do not take medical advice from here.

 

[GunnyFreedom]

I am so sorry to hear that TCE. My prayers are with you, your mother, and your family. i wish there was something more I could do.

 

[Tenbatsu]

The reason the antibiotics worked is most likely because you didn't have ALS but borrelia burgdorferi, or better known as lyme disease. Lyme mimics many chronic inflammatory diseases including ALS, MS, CFS, rheumatoid arthritis, Parkinson's disease and many more.

Getting her blood tested for lyme disease can be an option. Unfortunately the lyme bacteria embeds itself deep in the tissue of your body allowing it to hide from the immune system which prevents your body from producing antibodies against it. The antibodies are what they need to find to diagnose you with lyme disease. Some of the most heavily infected people routinely test negative.

Your mother should definitely try a tetracycline antibiotic like doxycycline or minocycline at low doses to start out with as a severe herxhemier reaction can occur from the die off. This is espcially true if she has chronic lyme disease that has been brewing for many years. It's best to start at low doses and work your way up while sticking to a strict detoxing regimen while supporting your body with vitamins and minerals. I have a lot of experience with lyme disease as I currently have it myself. If your mother happens to respond to antibiotic treatment feel free to PM me, I will help you. If you can't find a doctor to get you antibiotics I can also help with that as well.

 

[TCE]

Was diagnosed with mixed connective tissue disease which included ALS and Scleroderma in 1992. Was give 2 years to live. I heard of Dr. Harry Browns work with antibiotic Minocycline and scleroderma.

I was fortunate to have had a Dr. that allowed me to take the antibiotic. I took it for two years and I have survived to tell the story.

This antibiotic has now been shown to stop most cancers in it's tract with no kill off or side effects.

Run to this treatment as fast as you can and do not let any dr. talk you out of it.

This book tells you how to take it and how much, get it:

http://www.brightsurf.com/buy/books...e-proven-therapy-that-can-save-your-life.html

She doesn't have very many of the scleroderma symptoms, though. We have tried several antibiotics with no success.

I would say firstly, diet diet diet.

A book 'Could it Be B12' Look it up on Amazon, pay attention to the elaborate, hard to maximize and often broke absorption process for B12 in the modern American diet, stomach PH and bacterial balance being critical.


The other poster pointed to AntiBiotics. I would be careful... antibiotics usually level the balance of your gut floor. To throw out another line of thought that antibiotics might actually encourage an imbalance with yeast. Perhaps the antibotic he sites might well also discourage yeast or fungal issues. I'm not a doctor but these issues require a full, comprehensive understanding. I thought this was intresting http://www.healthlyceum.com/id5.html

I definitely agree with you about diet. I am firmly convinced most diseases can be dramatically helped by switching to an all-raw organic diet. Unfortunately, she won't do that, which is disappointing, but the people who do that are seriously heroes. We have switched her to a diet that is all-organic and mostly simple, one-ingredient foods. We have tried it before, but not to this extent. We did a couple of candida cleanses to no avail.

Please see a doctor and do not take medical advice from here.

We have seen many doctors over a couple of states, the best there is, supposedly and all have said the same thing, that the only thing they can do is prescribe one particular drug and it can only extend her life by a bit, but that's all. The side effects are deadly. Additionally, she was mis-diagnosed for two years, so my entire family is not very high on the medical community right now.

Gunny: Thank you. You have done more than enough already, now you just have to push through in a month and take one for liberty.

Tenbatsu: She has been tested a couple of times for Lyme disease and each time it showed nothing. Is the only way to know if you have it by beginning treatment? What are the main symptoms? How are you doing currently?

 

[squarepusher]

Cannabis/Rick Simpson Hemp Oil is shown to be beneficial for neurodegenerative diseases

http://www.projectavalon.net/forum/showthread.php?t=660

Medical benefits of cannabis.

Marijuana Cuts Lung Cancer Tumor Growth In Half, Study Shows http://www.sciencedaily.com/releases...0417193338.htm

Heart study finds benefit from pot
http://www.ocregister.com/ocr/sectio...cle_471358.php

Marijuana Chemical Fights Hardened Arteries
http://www.webmd.com/heart-disease/n...dened-arteries

Marijuana can prevent blindness in Glaucoma patients. http://www.preventblindness.org/reso...ijuanaFS01.PDF

Use of Marijuana to Treat Glaucoma
http://www.medem.com/medlb/article_d...C&sub_cat=2012

Cannabinoids promote embryonic and adult hippocampus neurogenesis and produce anxiolytic- and antidepressant-like effects
http://www.jci.org/115/11/3104?FIRST...855602212_4399

Decreased Depression In Cannabis Users, Study Says
http://norml.org/index.cfm?Group_ID=6586

Marijuana users report less depression.
http://www.doctordeluca.com/Library/...nMjUsers05.pdf

Medical marijuana for ADD YouTube - Medical marijuana for ADD and it's good for kids!

Study backs medicinal benefits of cannabis
http://www.cbc.ca/health/story/2000/...bis000301.html

U.S. Government Knew In 1974: THC Inhibits Cancer Tumors http://projectcensored.org/publications/2001/22.html

and to recent research in Spain finding that THC stopped brain tumors in rats and protected surrounding nerve tissue, demonstrating neuroprotectant aspect of Cannabinoids. PDF of Dr. Guzman's research: http://americanmarijuana.org/Guzman-Cancer.pdf

There is also evidence that cannabis is protective against the neurotoxic effects of stroke and head injury. Further evidence shows that cannabis is effective in slowing the progression of various neurodegenerative diseases such as Alzheimer's, MS, Parkinson's, and ALS (Lou Gehrig's Disease).
http://stroke.ahajournals.org/cgi/content/abstract/36/5/1071
http://www.pnas.org/cgi/content/full/95/14/8268
http://www.jneurosci.org/cgi/content/full/21/17/6475
http://www.ncbi.nlm.nih.gov/sites/entrez?cmd=Retrieve&db=PubMed&list_uids=12850548&dopt=Citation
http://brain.oxfordjournals.org/cgi/content/full/126/10/2191
http://www.letfreedomgrow.com/cmu/amyotrophic_lateral_sclerosis.htm

Cannabis also protects mice against brain cell death caused by alcohol.
http://jpet.aspetjournals.org/cgi/c...nd&searchid=1&FIRSTINDEX=0&resourcetype=HWCIT



for more info on Rick Simpson Hemp Oil see the blog in my sig

 

[Tenbatsu]

Tenbatsu: She has been tested a couple of times for Lyme disease and each time it showed nothing. Is the only way to know if you have it by beginning treatment? What are the main symptoms? How are you doing currently?

Everyone is affected differently when it comes to lyme disease. Muscle spasms are generally the first sign but that's within the first year or so. After that lyme usually does either or both of these two two things: It hits your large joints; knees, shoulders - and/or it goes to your brain where it can cause all kinds of problems.

Numbness in the face, slurred speech, tinnitus, gradual loss of eyesight, constant migraines, vertigo, dizziness, loss of taste; these are just a few of the hundred of symptoms neuro lyme can produce. There really are too many symptoms to list.

Thankfully I caught mine within the first year of infection and have been spared the lengthy battle with chronic lyme disease. My girlfriend was not so lucky as she most likely picked it up doing archeology in 2004. She has chronic neuro lyme and it has been a battle for the past two years to get her back into a normal condition. I will say this, doctors are generally useless, even some of the lyme literate ones. We have had more success treating ourselves than through the thousands of dollars spent with the medical establishment. She was first diagnosed with MS but we decided to get her tested for lyme which came back just slightly negative but basically right on the line. That was enough for me to believe she had it. We had just watched the documentary Under Our Skin two months before this so we had a basic understanding of how the blood tests are a poor indicator of infection.

I have a few questions for you too. What type of antibiotics has she tried so far and what dosages were prescribed? Did her symptoms get worse while on them? How long did she stay on them?

Edit: I forgot to address one of your questions. For people who routinely test negative some lyme literate doctors use a natural antibiotic called samento (cats claw) to see whether or not lyme is present. When used at a relatively high dose for three days you will more than likely get a herxhemier reaction from it which will more or less prove that you have lyme or one of its coninfections . Using doxycycline can also produce this same effect but can be risky for someone who has chronic neuro lyme. My girlfriend started out at doxy 200mg/day after she was prescribed it by her primary care doctor. After two days the herxheimer reaction in her brain was so severe and she had to stop it altogether.

Also note, there is a growing consenus that attacking lyme while not attacking its coinfections is futile. All coninfections need to be tested for and treated accordingly in order for the treatment to be successful.

 

[Cowlesy]

So sorry to hear TCE

But Mark is right. This forum is definitely not a place for medical advice. There may be some good suggestions, but like you are already doing, your homework is the best work on the subject.

Sorry

 

[CaseyJones]

Please see a doctor and do not take medical advice from here.

+infinity

 

[squarepusher]

yes, take some expensive pharmaceuticals, the FDA/Pharmacetucal's/Doctors are looking out for you =]

 

[Danke]

Please see a doctor and do not take medical advice from here.

+infinity

So sorry to hear TCE

But Mark is right. This forum is definitely not a place for medical advice. There may be some good suggestions, but like you are already doing, your homework is the best work on the subject.

Sorry

I'd say, don't take the advice of the Mods on this forum.

yes, take some expensive pharmaceuticals, the FDA/Pharmacetucal's/Doctors are looking out for you =]

Shack.

 

[Ethek]

I definitely agree with you about diet. I am firmly convinced most diseases can be dramatically helped by switching to an all-raw organic diet. Unfortunately, she won't do that, which is disappointing, but the people who do that are seriously heroes. We have switched her to a diet that is all-organic and mostly simple, one-ingredient foods. We have tried it before, but not to this extent. We did a couple of candida cleanses to no avail.

Simple is good. Inflammation can happen with food as well as for microbs. Most common allergies should be looked at on the diet. Humans are not well equiped to handle processed grains. I would cut out Wheat flour, and maybe oats unless you can find a gluten free source. I would also be mindful of anything with soy.

Dairy is another large one, use a gluten free pancake mix with coconut milk. Sugar is another big thing to watch (yeast growth which causes carb cravings)
Id avoid the rice milk for that reason
It sounds far out but it gets better the more you build your arsenal. I would not worry about all raw. I couldn't do that. Just eliminate one thing at a time.

You absolutely need to read the book 'Could it be B12' with an eye on how poor the standard diet is, even if its 'healthy' sounding if its loaded with carbs it likely is not what your body needs. Good luck. I see some room for optimism because you have a lot of understanding to come by and room to move with the diet.

 

[dannno]

Please see a doctor and do not take medical advice from here.

The doctor said she's screwed, this is all they have.

I personally don't take advice from the Medical Industrial Establishment.

 

[Ethek]

Found the book on Amazon

Could it Be B12

Lots of information that could be relevent to your mom. No raw diet required but you might go whole hog if you read the book. I think Alkalinity in the multistep process and how that is so easily (and negatively) affected by modern diet or mass doses of antibiotics, was the real eye opener for me. Made absolute sense to my matrix of beliefs around personal health.

Check out This Review Someone whos doctor suspected ALS screened for B12 Deficiency.

 

[dannno]

Looks like unfiltered apple cider vinegar is going to help quite a bit as well, according to the link posted in the OP, the post right above mine, making yourself more alkaline.

 

[fedup100]

The reason the antibiotics worked is most likely because you didn't have ALS but borrelia burgdorferi, or better known as lyme disease. Lyme mimics many chronic inflammatory diseases including ALS, MS, CFS, rheumatoid arthritis, Parkinson's disease and many more.

Getting her blood tested for lyme disease can be an option. Unfortunately the lyme bacteria embeds itself deep in the tissue of your body allowing it to hide from the immune system which prevents your body from producing antibodies against it. The antibodies are what they need to find to diagnose you with lyme disease. Some of the most heavily infected people routinely test negative.

Your mother should definitely try a tetracycline antibiotic like doxycycline or minocycline at low doses to start out with as a severe herxhemier reaction can occur from the die off. This is espcially true if she has chronic lyme disease that has been brewing for many years. It's best to start at low doses and work your way up while sticking to a strict detoxing regimen while supporting your body with vitamins and minerals. I have a lot of experience with lyme disease as I currently have it myself. If your mother happens to respond to antibiotic treatment feel free to PM me, I will help you. If you can't find a doctor to get you antibiotics I can also help with that as well.

First off, recently and I do not have the link but did read it, ALS DOES respond to minocycaline and so does 1/2 of all cancers. Recent articles point out that cancer it turns out is an infection!

The antibiotics worked for me because ALS, cancer, and a plethora of other diseases that are a death sentence are nothing more than bacteria.

The doctors will let her die. Unless you have taken this antibiotic you have done yourself no good.

Diet will also kill you if your nervous system is infested with bacteria. Diet is something to do with proper treatment.

AS far as die off. This is a good sign and easy to diffuse. juice a whole organic grapefruit and one whole lemon. Add 1/2 cup of pure virgin olive oil and drink all at once and go to bed as usual. In the morning you will feel like you got a shot at life.

No, you do not taste or notice the olive oil.

Again, my sister found Dr. Browns study for me by networking had she not done so I would not have been here to wreck havoc on RPF.

 

[TCE]

Simple is good. Inflammation can happen with food as well as for microbs. Most common allergies should be looked at on the diet. Humans are not well equiped to handle processed grains. I would cut out Wheat flour, and maybe oats unless you can find a gluten free source. I would also be mindful of anything with soy.

Dairy is another large one, use a gluten free pancake mix with coconut milk. Sugar is another big thing to watch (yeast growth which causes carb cravings)
Id avoid the rice milk for that reason
It sounds far out but it gets better the more you build your arsenal. I would not worry about all raw. I couldn't do that. Just eliminate one thing at a time.

You absolutely need to read the book 'Could it be B12' with an eye on how poor the standard diet is, even if its 'healthy' sounding if its loaded with carbs it likely is not what your body needs. Good luck. I see some room for optimism because you have a lot of understanding to come by and room to move with the diet.

We have tried soy-free and gluten-free as well with no change. Additionally, we tested her for those allergies and nothing came up. I was surprised myself that after two months of gluten-free there was no change, but that's what happened. We have been at this for 3 or 4 years, unfortunately. We have tried: gluten/soy-free, eliminating all animal products (vegan), vegetarian, loading up on Omega-3s, and so many other things I can't even list. Sugar is another thing she won't give up...I know, very frustrating. I will look into the book.

The doctor said she's screwed, this is all they have.

I personally don't take advice from the Medical Industrial Establishment.

Yes, we have been told that by every doctor who will give any kind of answer. Their standard time line is 1-5 years and she has had it for over 4, so they believe she has MAYBE 1.5 years left. The people on these forums have a wide variety of skills and specialties, so I would not be shocked if someone on here could help or was knowledgeable in this area.

Basically: Taking advice from RPF>Listening to the Medical Establishment and just sit around and wait for her to die. Yes, I am currently doing things myself, but extra knowledge isn't a bad thing.

 

[Ethek]

We have tried soy-free and gluten-free as well with no change. Additionally, we tested her for those allergies and nothing came up. I was surprised myself that after two months of gluten-free there was no change, but that's what happened. We have been at this for 3 or 4 years, unfortunately. We have tried: gluten/soy-free, eliminating all animal products (vegan), vegetarian, loading up on Omega-3s, and so many other things I can't even list. Sugar is another thing she won't give up...I know, very frustrating. I will look into the book.

Allergens in the diet may well induce inflammation in your intestines, that inflammation will prevent absorption of the important nutrients. Prolong chronic inflammation takes a while to heal. The only outward symptom might be a little acne or reoccurring dandruff.

Just an aside, an all vegan diet has none of the B12 Vitamins you would need. It is a multistage process to get the B12 from animal proteins to your neural system. I would keep to the diet but check out the book. The apple cider vinger bit might sound like hersay but Danno is likely spot on in his recommendation. Whats a couple table spoon of viniger going to hurt? At worst it might cure some heartburn, which is usually a common tell to an out of wak ph balance