So... I just started an IV on my 3 year old

[FindLiberty]

 

[I<3Liberty]

There are meds in the pipeline that have a half life of 10 days. My kids meds have a 24 hour half life. There are a slew of other options including gene therapy also in various stages of trials. Generally, clinicals are for adults only right now and any kind of gene therapy is also a decision that parents generally cannot legally make as there is a treatment available so its not really life or death... he just needs his meds. I don't know that I'd even want to put my kid first on the line to try gene therapy out anyway. I've been having the discussion with the mrs about whether we're really even interested in the 10 day product before its been out a few years.

I see. Recently, there was a 7-year-old that was the first child to get gene therapy for leukemia. I'm hoping it goes over well for other diseases.

It's definitely difficult to be the first person in a treatment, so I understand not wanting to go down that path.

All the best!

 

[KCIndy]

HUGS and a big High Five for a job well done!

But, heck, man...... I knew ya could do it. You're good.

 

[tangent4ronpaul]

I've saved Medicaid min $500 / dose by not visiting the ER, which is liberating on the conscience. Now if I could just figure out some way to cook this stuff up in my kitchen....

Sorry I found the thread late. Virtual hugs!

Can't help you with experimental drugs, but if you PM me your e-mail address, I'll send you some documents on how to make IV fluids.

-t

 

[tangent4ronpaul]

Found the docs:

CALC Workbook
coconutbiblio
cocanutiv
Field expedient water for injection
IDA Small scale production of IV fluids
making IV fluids FIP
making iv fluids - sroberts
making iv fluids - tropdoc
making iv needles
making your own IV Fluids
Osmotic Production of Sterile Oral Rehydration Solutions
Proctor info
System for making Hospital Solutions in the 3rd world

Some will be more useful than others.

-t

 

[brenton]

close one, but good save. i can only imagine how stressful it must be to have to worry about tiny nicks and cuts like that!

 

[pacelli]

Way to go for self-reliance and being prepared.

 

[tangent4ronpaul]

Thinking about your kids problem, are we usually talking about sub-dermal bleeds or actually loosing blood volume due to external bleeds?

For the latter, there are products like Quickclot that will stop these fast. They are somewhat expensive, but there are improvised alternatives. There are two approaches to this. The first is a kind of volcanic rock that is pulverized, and placed in a oven at 125-150 for an hour or two to drive off moisture. If placed in a container that will keep it dry, when applied to a wound, will have an exothermic reaction that will cauterize it. It hurts! Mylar sealed w/ a curling iron is a good container for this and the next one. The second has to do with the exo-skellatins of shrimp. Go out and find a good deal on a bunch of shrimp for dinner. Chow! bring a bag and take home all the shrimp hulls. Maybe bribe the wait person to bring you a bunch more... wash/clean them out really good! Pulverize. bake at 125 deg for 1-1.5 hrs. seal as above. To use either, blot off blood and pour in.

The above is usually used for gunshot wounds. They work well, really well.

Both will stop arterial bleeding!

Some places will sell you the PRO level stuff
http://www.chinookmed.com/cgi-bin/category.cgi?category=s-hemostatics

There is a aviation survival equip co that is really good too, but I'm spacing on their name.

For the former - I'd be thinking about a BP cuff over the area of injury, but I'd be worried about cutting off blood supply to the distal limb for an extended period of time... Consult your doc on this... Transport time to the hospital, maybe. You can extend this by letting up briefly every 5 minutes or so... Being snowed in - not! Shifts, if it comes down to it, as with IV fluids, you are eventually just bleeding saline. Transfusions are also possible.

Hope that helps!

-t

 

[presence]

Thinking about your kids problem, are we usually talking about sub-dermal bleeds or actually loosing blood volume due to external bleeds?

For the latter, there are products like Quickclot that will stop these fast. They are somewhat expensive, but there are improvised alternatives. There are two approaches to this. The first is a kind of volcanic rock that is pulverized, and placed in a oven at 125-150 for an hour or two to drive off moisture. If placed in a container that will keep it dry, when applied to a wound, will have an exothermic reaction that will cauterize it. It hurts! Mylar sealed w/ a curling iron is a good container for this and the next one. The second has to do with the exo-skellatins of shrimp. Go out and find a good deal on a bunch of shrimp for dinner. Chow! bring a bag and take home all the shrimp hulls. Maybe bribe the wait person to bring you a bunch more... wash/clean them out really good! Pulverize. bake at 125 deg for 1-1.5 hrs. seal as above. To use either, blot off blood and pour in.

The above is usually used for gunshot wounds. They work well, really well.

For the former - I'd be thinking about a BP cuff over the area of injury, but I'd be worried about cutting off blood supply to the distal limb for an extended period of time... Consult your doc on this... Transport time to the hospital, maybe. You can extend this by letting up briefly every 5 minutes or so... Being snowed in - not!

Hope that helps!

-t

I actually freaked out and bought a whole bunch of that kind of stuff when he was first diagnosed... never touched it really .

Most of his bleeds (that we treat with IV "benefix") are bleeds into the synovial fluid in joints; most of the bleeds we've dealt with have been knees, ankles, and various foot bones, though both of his elbows have had trouble. Sometimes we get muscle (typically shins and forearms), mouth, and nose bleeds, but they're usually pretty minor. For topical cuts we've found little packets of xanthan gum or styptic pencil work wonders without any fancy meds or waiting days for bandaids to be effective. I keep "celox" and a host of other otc products... but have yet to get into it.

He doesn't bleed any faster than anyone else really... he just keeps leaking, however slowly, unless you tend it.... be it with rest, ice, compression, elevation, bandages, xanthan... or benefix... or another product called amicar for mouth bleeds. His joints are the most critical element of it all at this age... if they bleed too much he loses them and needs replacements... grandpa had 5 artificial joints.

We've tried a host of other "home remedies" many just make things worse... arnica oil; great for bruises, not my kids bruises.


thanks for your insight though... will look into some of those links on the IV stuff.


presence

 

[tangent4ronpaul]

Think I updated my post after yours... Look again.

BTW: most of the publications mentioned are off the Internet. Some only e-mail addy's with hard copy showing up... From organizations that work in the background and never meet the news... Back channels of info...

-t

 

[tangent4ronpaul]

Really - my first suggestion ( and in all of these I suggest you become self dependent)
Move closer to life support
Move out of an area where you can be snowed in
Move someplace where a EMS unit is across the street and a hospital is 2 blocks away

Seriously dude!

-t